martes, 25 de febrero de 2014

... and what about Asperger's Syndrome ?

I posted about Hans Asperger a few days ago in my facebook, at the International Asperger's Day on Feb. 18th that coincided with Asperger's birthday in 1906, in which I confirmed and admitted that indeed I am convinced that besides Tourette's Syndrome, I also am an "Aspie" -- the popular term for us who have Asperger's Syndrome. (please read http://andystarblogger.blogspot.com.es/2013_05_01_archive.html for my entry about Tourette Syndrome). It is quite common for a person to have both Tourette AND Asperger, since they both fall under the same autistic spectrum. .............................................................................................................................................. It all began when I was diagnosed in 1996 with a clear Tourette Syndrome and a "high probability" of Asperger's Syndrome. I even don't understand why they put Asperger with an apostrophe "s", which they don't put with Tourette! Oh well, psychologists, they are all full of mysteries. From now on, I'll refer to them with AS and TS only. .............................................................................................................................................. AS remains a controversial diagnosis due to its unclear relationship to the autism spectrum since Mr. Asperger's paper published in 1944. Only in the 1980s that people took interest in it. I have indeed given a clue of my AS in an interview at the Jakarta Post with writer Bruce Emond, back in 2008 during the celebration of my 40th birthday : http://andystarblogger.blogspot.com.es/2010/09/horribly-lonely-in-jakarta-post.html . I quote myself answering Mr. Emond's question: What would people be surprised to know about you?. I answered: I have this strange hormone in me which provokes the feeling of extreme loneliness (even if I am in a crowd). It’s been working inside me since I was a teenager. And that loneliness cannot be cured by just being with someone. When it happens, it usually indicates that I should write music. My best music is written when I am feeling horribly lonely. .............................................................................................................................................. Being lonely, or alone, is a common trait for Aspies. AS, as with the other syndromes in the autistic spectrum, has more to do with social and psychological aspects than a physical one. I won't try to explain everything about AS, since I am not an expert in that, and also since AS is still a mysterious syndrome. The problem is that there are so many speculations about people in the past who allegedly suffered from AS which I find rather disconcerting, such as Thomas Jefferson, Sir Isaac Newton or Albert Einstein. Even Mozart! With Mozart, his Tourette Syndrome was pretty convincing, but how would one know that he had AS too? Anyway, there are similar traits of people with TS or AS. What I would like to say is just that we, people with AS and TS could, and even should, behave and socialize quite "normally". I certainly --and am sure I represent other people with AS and TS-- do not want to be treated differently. Yeah, during the Nazi era, people like us were put into concentration camps, but that was the case of everyone "different", such as homosexuals etc. In fact, it is proven that people with AS usually excel in one or even several fields, since a particular part of our brain is highly activated. Therefore, we get people with AS like Bill Gates or the founder & designer of Pokemon game, Satoshi Tajiri. .............................................................................................................................................. Another thing I would like to rectify is the common belief that people with AS can't be "empathic". That's very wrong. In fact, after talking with fellow Aspies, I can tell you that we are just the opposite: we are hypersensitive people. We just don't know, most of the times, how to express it physically. And I think this is where my music comes from : it can express things which I am unable to express through gestures, words or actions. I found a good article about debunking myths of AS and explaining it better here : http://psychcentral.com/lib/debunking-6-myths-about-asperger-syndrome/0008957/2 . So, that convinced me again of what I always said about music : We write, perform and play music to express, not to impress.